This guidance covers decisions to start, re-start, continue, or stop CANH for adults in England and Wales who lack the capacity to make the decision for themselves.
It covers previously healthy patients in vegetative state (VS) and minimally conscious state (MCS) following a sudden-onset brain injury, as well as the much larger group of patients who have multiple comorbidities, frailty, or neurodegenerative conditions in whom decisions about CANH are needed.
It updates and expands on existing guidance about life-sustaining treatment from the BMA, Royal College of Physicians (RCP), and General Medical Council (GMC), and should be used in conjunction with those.
Key topics covered
- The legal context for decision-making
- Who is the decision-maker, and who must be consulted?
- Conscientious objections
- Clinical assessments
- Best interests assessments
- Second opinions
- Managing disagreement and uncertainty
- Governance and audit
How to use this guidance
The guidance is split into two parts:
- General guidance which applies in all cases (part one); and
- Specific guidance for the different categories of patients covered by the guidance (part two).
You are advised to read the whole of part one and the relevant section(s) of part two. Information in the appendices covers:
- practical guidance for best interests decision-making
- a sample form for recording information and discussions about best interests
- recommendations on implementation, training and support; and
- detail about the legal background to decisions about CANH
You can also download the quick reference guide, which is a condensed summary of the full guidance. The quick reference guide should be read in conjunction with the main guidance, and not in isolation.
You might find this helpful if you are coming to the topic for the first time; or, if you have more experience of decision-making, it can help as an aide memoire of the guidance in full.
Download full guidance
Download the quick reference guide
Information for GPs
BMA members may receive a free printed copy of the guidance (while stocks last) by emailing [email protected] with their name, mailing address and membership number.