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I've got to get on and stop expecting that call

I know that it’s going to be a long wait for a kidney transplant for me as I’ve been told I’m extremely difficult to match: I have very high antibodies and a rare blood group.

I found out I had end-stage kidney failure after being rushed to hospital following a fairly routine visit to the GP.

After a while you realise you've just got to get on with your life and not even expect the call to come.  

Lisa McGee

When you’re first told you need an organ transplant, it’s really hard. You feel you don’t want to go anywhere or do anything in case you miss the call telling you there’s a donor available. 

But after a while you realise you’ve just got to get on with your life and not even expect the call to come.

I’m on dialysis four times a week because my kidneys have absolutely no function left, I would literally die within weeks without it.

On my days off, I do as much as I can, see friends, go out, do housework – all the ordinary things that other people do, just at a much slower pace.

It’s changed my life in lots of ways – I’m less confident, I don’t like being in social situations other than with very close friends because I’m very tired and I’m the only one who can’t drink. It definitely affects personal relationships.

A move to an opt-out system would be a positive step; there would be more organs available throughout the UK for anyone who needs one – hearts, lungs, kidneys. So many lives could be changed, not just saved, but changed for the better.