One of the things we heard repeatedly when consulting with clinicians and other professionals involved in decision-making, was the need for family members to have clear information about their role in the decision-making process.
We have developed a leaflet for you to share with family members and others close to the patient. This leaflet can help to initiate discussions about best interests in relation to CANH. It will also help encourage them to think about the type of information they want you to know, and to help support ongoing conversations about treatment options and best interests.
It is also essential that family members know where to go for further information and support, and so our leaflet includes a list of useful resources to which you might want to signpost.
Download leaflet for families