Patient information award 2019 winners

First prize

HSC Hospital passport by Public Health Agency

Guidelines produced in 2014 by GAIN (Guidelines and Audit Implementation Network) on caring for people with a learning disability identified specific areas for improvement, which included that 'a regional hospital passport for people with learning disabilities should be developed and made available routinely for use when people with learning disabilities are in contact with general hospitals across Northern Ireland'.

Runner up

Finding out you have lymphoma - easy read version by Lymphoma Action 

First prize

The Itchy-saurus by Dr Rosie Wellesley and Pavilion Books LtD

Eczema affects a fifth of children in developed countries and its prevalence is increasing. Managing eczema takes time and can be stressful for parents and children alike and requires tenacious self-care. 

A high quality picture book where eczema features in the story. Its aim was to be fun enough to read for pleasure but to also have an educational message that normalises eczema for those who have it, while familiarising others with the condition. 

Runner up

Starting secondary school comic by Cystic Fibrosis Trust

First prize

Later Life Care by Which?

Which? Later Life Care is a free website from the consumer organisation that enables people to make decisions about care choices for later life.

The site offers a unique blend of practical advice guides, real-life stories and tailored step-by-step tools to provide support, guidance and trusted information for people making decisions at an often emotional and difficult time.

More than forty guides provide guidance on home care, financing care, housing options and end of life.

Runner up

Care companion by Global Initiative, June 2018 

First prize

Clinical trials for lymphoma by Lymphoma Action, December 2018

The booklet was written for anyone affected by lymphoma who is considering entering a clinical trial. It aims to explain what clinical trials are, how they work and what it means to take part in one in an easy-to-understand format. It should empower people to make an informed decision on whether taking part in a clinical trial might be right for them; demystify trials, thereby encouraging more people to take part, and provide information on recent lymphoma research.

Runner up

Their story, your choice by Terrence Higgins Trust, February 2018

First prize

Can't pass it on campaign by Terrence Higgins Trust, July 2018

Can’t Pass It On is a myth-busting multi-channel campaign aiming to end HIV stigma and cut HIV transmissions.

The campaign responded to two seminal findings: conclusive proof that people on effective HIV treatment can’t pass on the virus,and that only 9% of the British public know this.

Terrence Higgins Trust believed the research proven fact had the potential to be life-changing for people living with HIV by helping to breakdown the stigma and fear around HIV. 

Runner up

Everybody's Different by Ectodermal Dysplasia Society and EnvisionPharma Group, September 2018

First prize

Finding your way with bereavement by Motor Neurone Disease Association, December 2018 

Finding your way with bereavement is intended for former main carers, family members and friends of people with MND (motor neurone disease). 

Families may wish to read the booklet together, to help them understand the challenges that may lie ahead. When a loved one is living with MND, grieving can begin from the day of diagnosis.

Finding your way with bereavement aims to help bereaved people feel that they are not alone in what they are experiencing, and that these emotions are natural.

Runner up

Planning ahead: my treatment and care by Compassion in Dying, April 2018 

First prize

Their story, your choice by Terrence Higgins Trust, February 2018 

Runner up 

Breast Cancer Care app (BECCA), May 2017 

First prize

Living with and beyond lymphoma
by Lymphoma Action, November 2018

Live your Life is a series of one-day workshops developed by Lymphoma Action. They are for people who have finished treatment or are on ‘watch and wait’.

The resource covers what lymphoma is, how to cope with it, what to look out for in case your lymphoma returns, dealing with the emotional aspects of living with lymphoma, and practical topics such as diet and exercise.

They are held in a relaxed, informal setting where people have the chance to meet others affected by lymphoma and to share their experiences in a safe and confidential environment.

The workbook would summarise the key points of the topics covered in the workshop, allow space for participants to record their own experiences and thoughts, provide practical tips and signpost to further information.

Runner up 

Multiple Sclerosis Trust website
MS Trust, August 2018

First prize

Cervical screening after sexual violence
Jo’s Cervical Cancer Trust, August 2018

We created this resource to provide survivors of sexual violence with emotional and practical support before, during and after cervical screening (a smear test), if they choose to have the test. 

Runner up 

Their story, your choice
Terrence Higgins Trust, February 2018

First prize

Axial spondyloarthritis know-how (ASK) self-management toolkit
Guy's and St Thomas' NHS Foundation Trust

Runner up

Caring for someone with scleroderma
Boehringer Ingelheim (sponsor) and Hamell Communications, April 2018

First prize

Axial spondyloarthritis know-how (ASK) self-management toolkit 
Guy's and St Thomas' NHS Foundation Trust

Runner up

Sammy Bear’s mummy is in hospital: a story for children aged 3-6 to be read with an adult
South London and Maudsley NHS Foundation Trust, March 2018

First prize

Breast Cancer Care app (BECCA)
Breast Cancer Care, May 2017

Runner up

How do beta blockers work? How does aspirin work? How does warfarin work? How do ACE inhibitors work? How do novel oral anticoagulants (NOACs) work?
British Heart Foundation, October 2018

First prize

distrACT app
Expert Self Care Ltd, October 2017

The free distrACT app gives people who self-harm and may feel suicidal quick, easy and discreet access to information and advice, so they can manage difficult feelings, cope with a crisis and find help and support.

Runner up

Infopack for living well with myeloma
Myeloma UK, January 2018

First prize

Helping your child to eat well during cancer treatment: A practical information guide for parents and families of a child or young person with cancer
Children’s Cancer and Leukaemia Group (CCLG), October 2018

This booklet is a practical information guide for parents and families of a child or young person with cancer. There is an introductory section on different food groups and their role in how they help the body to function properly.

The booklet addresses this issue with advice on the types of food to give the child and the importance of increasing physical activity.

Information sources are signposted to at the end of the booklet and parents are encouraged to talk to their child’s medical team and dietitian for more specific advice. This definitive guide is widely used within the children’s cancer centres by paediatric oncology teams.

Runner up

Leaving home and eating well with cystic fibrosis
Cystic Fibrosis Trust, February 2018